Who’s involved

Bringing people together to share information, build alignment, and solve problems is fundamental in creating true change.

The ‘MS Motion: Moving Faster to Protect Brain Health’ initiative brings together members of the Australian MS community, including those living with MS, The Brain Foundation, and local and international neurologists. United we stand in our vision to raise awareness about how early intervention and prompt treatment can improve the lives of people with MS.

Here is what some of the members of the initiative have shared about why this is such an important movement to support.

Hannah, 23 years old, NSW, living with MS:

“I found the entire MS Motion experience to be absolutely brilliant. It was wonderful to receive reliable information from academics about the disease and how important it is to focus not only on managing MS symptoms, but also brain health collectively. The information we were provided with allowed me to rethink my lifestyle and how I can best adapt it to help my body be as healthy as possible.”

Rania Melhem, 31 years old, VIC, living with MS:

“I look back on when I was diagnosed with MS at 19 years old, over 11 years ago, and I’m so grateful for initiatives like this because I know that people who are diagnosed now will have resources they can use to be able to maintain their MS from the outset, for better outcomes in their future.”

Professor Gavin Giovannoni, Chair of Neurology, Blizard Institute of Cell and Molecular Science, Barts and The London School of Medicine and Dentistry, Queen Mary University of London:

“Great to be involved with this initiative and group of such well-informed and socially-connected people with MS who are clearly taking the message of "Brain Health: Time Matters in Multiple Sclerosis" to heart. It is clear that the true change agents in the MS space will be people with the disease and not necessarily us healthcare professionals or our politicians. This initiative reiterates to me that if I had MS I would want to live and have my MS managed in Australia.”

Dr. Chris Dwyer, The Royal Melbourne Hospital:

“Even though Australian patients benefit from a sophisticated MS network with world-class support services and treatments, we cannot assume that newly diagnosed people with MS will navigate that system efficiently and without impediment. We need people with MS to understand the importance of taking control of their own unique MS journey – by acting quickly and working with their healthcare professionals to get the best management strategy for them.”

Sofie Stemberger, 24 years old, VIC, living with MS:

This initiative equips people with MS with the knowledge necessary for them to empower themselves and make informed choices about their disease. As Oscar Wilde said, “the answers are all out there, we just need to ask the right questions.”

Samantha Billington, 31 years old, NT, living with MS:

“The MS Motion initiative made me feel very strong, important and empowered. The experience made me feel very proud of my MS diagnosis, and it gave me a voice to help create those much needed resources to put out into the MS community – resources that will assist people like myself, make the best informed decisions about managing their own health care.”